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Last updated:
19 January 2026

Understanding Neuroendocrine (NET) Cancers

Neuroendocrine tumours (NETs) is the umbrella term for a group of unusual, often slow-growing cancers.

Last updated 19 January 2026

What are NETs?

A neuroendocrine tumour (NET) begins in the specialized cells of the body’s neuroendocrine system. These cells have traits of both hormone-producing endocrine cells and nerve cells. They are found throughout the body’s organs and help control many of the body’s functions. Hormones are chemical substances that are carried through the bloodstream to have a specific effect on the activity of other organs or cells in the body. Most NETs take years to develop and grow slowly. However, some NETs can be fast-growing. 

Neuro-endocrine = messenger cells of the body 

What is NET Cancer?

Where are they found?

Neuroendocrine tumours (NETs) can start almost anywhere in the body, but most commonly found in the digestive system, lungs, pancreas and reproductive organs. These tumours develop from secretory cells found throughout the body and are grouped by where the tumour started in the body. 

The most common types of NETs are named with their primary site: 

  • Gastrointestinal neuroendocrine tumours (GI NETs)
  • Lung neuroendocrine tumours (lung NETs)
  • Pancreatic neuroendocrine tumours (pNETs) 

NETs can also begin in other organs and sometimes, NETs may develop in or on the adrenal glands. These rare types of NETs are called pheochromocytoma and paraganglioma.  

Symptoms experienced may include: 

  • Abdominal Pain
  • Diarrhoea
  • Flushing / menopause like symptoms
  • Bloating
  • Wheezing / chronic cough
  • Heart Burn
  • Weight changes 

Newly Diagnosed?

Receiving the news that you have NET cancer can be worrying and overwhelming. Often reaching out to others who are going through, or have been through similar situations can be comforting.

 Neuroendocrine Cancer NZ has built a community of who are supportive and often happy to connect over a phone call, email or even coffee. 

Join our database to get up-to-date information on various ways you can engage with others in our NZ NET Cancer community, or contact one of our NET Information Managers if you have a specific enquiry.