Living with neuroendocrine cancer can feel overwhelming, but you don’t have to face it alone.
Our Patient Support resources provide information, guidance, and connection to help you navigate and cope with the everyday challenges of life with NETs.
Explore advice, peer support, and practical tips designed to support you and your whānau at every stage of your journey.
Living with NETs - Online programme
A free 4-week online programme designed for patients and caregivers navigating life with neuroendocrine tumors.
For progamme details, upcoming dates and to register: More information on Living with NETs
In-person and online kōrero and catch-ups
We believe that sometimes the best support can often be found by meeting others who are going through a similar journey. With this in mind, we try to facilitate and offer opportunities for patients and families to meet in a relaxed manner.
There are patient catch-ups around the country that are organised in local cafes so you can easily attend and meet others without feeling any pressure to stay or contribute in a group environment, come and go as you please.
Join our online community - Private Facebook NET Patient Group & Facebook Page
Our closed NET NZ Patient Group offers patients from around the country a chance to connect online. This group is specifically for New Zealanders who have been affected by NETs as a patient, family member or close supporter of a patient. It's a platform to share information and open lines of communication with others who may be experiencing the same issues as you. Please use this group to share knowledge and support each other.
To maintain privacy, this is a 'closed' group, which means that your posts are only shared with those within the group.
You can also follow our public Facebook page where we post general updates and information.
Contact a NET Information & Support Person
Avril, our wonderful Information and Support Manager is an experienced NET specialist nurses who is available to answer questions, provide information or refer you to someone who might be able to help.
Contact Avril Hull
'Zoom In' - Monthly online information sessions
Another way NCNZ supports our NET Cancer community is by organising guest speakers for monthly video calls for you to join. These sessions aim to connect and educate. Often we have guest speakers who talk about a particular NET or wellbeing topic, or just offer an opportunity to connect with other NET patients, support people or HCPs around the country.
If you're new to Zoom and not sure how to connect online, just get in touch and we'd be happy to help you.
Support for patients and support people travelling to Auckland
Travelling and staying in Auckland for PRRT (or other specialised NET treatment) can be overwhelming and unfamiliar. Where's the best place to park? How far is the walk from Domain Lodge to the hospital? Where can I get something to eat
To help alleviate some of those concerns, one of our support people is just a phone call away if you have any questions or need to clarify what to expect.
If you are staying at Domain Lodge, we can assist with your grocery requirements. Just let us know!
Get in touch about your stay in Auckland: hello@neuroendocrinecancer.org.nz
